Asa Singleton is a cheerful, happy go lucky kid aged 14. He also has a disease called Neurofibromatosis 2 (also called NF2) which causes tumours to grow on nerve endings within the body. It is normally a genetic disease that only affects 1 in 40,000 people. However in Asa's case it was a spontaneous mutation.

The disease has already claimed most of his vision (Asa is registered blind); and the hearing in his right ear. But with his limited senses Asa continues to lead a full and normal life.

Asa's condition recently took a turn for the worse with a deterioration in his remaining sight. This was due to an existing tumour on the optic nerve. With time running out Asa and Dad Paul decided to travel the world and see the sights before it was too late. The story was reported worldwide by press and television. The main concern now though is how to retain what is left of Asa's vision; the one thing that Asa relies on. We are constantly looking for medical advances, surgical breakthroughs or anything that could stop this cruel disease but time is against us. Despite all this Asa remains positive and strong and is a joy to be around. He lives life to its fullest and his determination against all odds is a shining example to all of us. We can only hope that by raising awareness about Asa's condition more funding can be found to help find a cure.