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Asa Singleton is a cheerful, happy go lucky kid aged twelve. He also has a disease called Neurofibromatosis 2 (also called NF2) which causes tumours to grow on nerve endings within the body. It is normally a genetic disease that only affects 1 in 40,000 people. However in Asa's case it was a spontaneous mutation. This disease has already claimed most of his vision, but with the small amount of sight he retained he leads a full and normal life, although he is registered blind.
Asa's condition has recently taken a turn for the worse when tumors were detected on his acoustic nerves. Clearly they require surgical removal at the earliest opportunity and the primary concern is to retain as much of Asa's hearing as possible. We have considered many medical opinions and estimates of how much of Asa's hearing can be saved vary. However the clear message we have received is that there are specialists in this field who can give Asa the very best chance. Although we have a wonderful team of surgeons at Southampton Hospital, we have had to scan the world to find a team who are able to perform this delicate operation to preserve Asa's hearing.
Images and links in news articles will open in a new window.
The premiere screening of This Is Asa on Friday 20th April was a sellout success.
crowds of supporters turned up for the event to see the film for the first time and help raise the funds to send it to film festivals worldwide.
At the after party, music from Paul Armfield, Cozy Flashbak and The Chancers added to what was a great evenings entertainment.
For more details about the film go to www.thisisasa.org
visit the official film website
Nearly 300 guests attended a service at St Mary's Catholic Church yesterday to see Asa baptised into the Catholic faith.
The service was followed by a celebration at the Ryde Castle which went on well into the night.
Religeon has played a big part in Asa's life of late, and he takes great strength from his faith in times of hardship.
Asa would like to thank all those who attended and made it a very special day.
(Taken from Isle of Wight County Press Article)
By Lori Little
GLOBAL interest in the story of 14-year-old Asa Singleton, who travelled the world to store up memories before he loses his sight, has prompted a family friend to make a documentary about him.
Simon Higgin spent the summer in the shadow of the plucky Ryde teenager, who has a condition that causes tumours to grow on his body.
He recorded interviews with Asa, his family, friends, surgeons and teachers and followed him doing his routine activities and attending events such as the Nokia IW Festival.
When American film companies offered money for the story, and ITN News and Channel 4 both enquired about making programmes, the family sat down to decide what to do.
Despite the offers of cash, Asa was reluctant to be filmed by strangers but the answer came when Simon offered to help.
He set up a company, Skygod Film Productions, and has made an upbeat documentary about Asa, keeping the editorial content close to home.
Filming is almost complete and Simon hopes to have the editing finished by the end of the year, complete with an original score by Ryde musician Rick Stanbridge and voice-over by Ryde actress Gwen Glover.
18th October 2005
Asa and Simon Higgin of Skygod Films
picture by Chris Twaites
for more news stories about Asa visit the Isle of Wight County Press website
After our decision to raise more awareness about NF2, we set off to London for GMTV's This Morning show before flying to New York for two TV interviews : NBC Today and INSIDER.
With the massive publicity raised by these programmes and continued press interest worldwide it was not long before we were approached by several Film and TV companies for rights to Film, dramatisation and Documentaries.
After sitting down and discussing this with Asa it was clear that it would be a real strain for him to cope with the intrusion.
With this in mind we turned down all offers.
Asa, however, was keen to do something with close friend Simon Higgin. Simon has set up Skygod Films and was keen to offer a long term commitment over the summer months at a pace Asa would find easier to handle.
Simon has been around since the early days and was also one of the Peru Trekkers. He wanted to film Asa in his everyday environment in order to show Asa's strong positive personality.
Filming began in July and should be completed by late 2005. Simon then intends to submit the film to major International Film Festivals before offering it to broadcast.
Proceeds from the film will be going directly to Asa's Trust Fund.
Our hope is that the film will raise more awareness of Asa's condition which in turn will generate funding to find a cure for research. Maybe then a miracle will be found to free our son from this nightmare.
Paul Singleton
28th August 2005
For more information about the film contact Simon by email: skygodfilms@yahoo.co.uk
Asa and Simon
SKYGOD FILMS: producer and director pose for a photo!
The 2005 IOW Festival was the highlight of the summer for Asa. The live music and atmosphere was great both in and out of the festival. But most memorable for Asa was his stint backstage thanks to mate Riks guest wristband!!
After successfully negotiating the security guards Asa managed to charge-down Michael Stipe of REM, before chatting with Embrace and meeting Romeo of Magic Numbers.
But the greatest moment of the weekend was meeting Starsailor, Barry (keyboards) and Ben (drums) were more than happy to take the time to chat with Asa over a cuppa before getting a signed songsheet and a few photos from the band. Lead singer James was a little surprised when ambushed returning from the loo..!! but signed the sheet and stopped to chat anyway.
All in all a great weekend.
Simon 14-06-05
Asa meets Starsailor
Ben (drums), Asa and Barry (keyboards)
Paul and Asa appeared today on ITV's This Morning programme with Fern Britton and Philip Schofield, giving a lengthy interview before flying to New York later to appear in 3 TV programmes. NBC - The Today Show on Friday morning, Entertainment Tonight on Friday Evening and Inside Storey (time to be confirmed) - all in USA time. Paul hopes to highlight there, as well as he did here, the need for funding to support research on NF1 & 2.
He was able during the interview today to acknoledge the help and support given in particular by the Isle of Wight community. A surprised Asa was presented with a guitar and the interviews went well and the response excellant.
Well, as a lot of you have now seen, the story of our epic trip around the globe has gone very public. I was very concerned at first for the protection of Asa, but after sitting down with him and the family it was decided it would be good to speak to people about the trip and to bring the attention of NF2 to so many others.
There are families across the world who, like us, wait and hope for a breakthrough in beating this terrible condition. In this world we now live in, exposure like this (to the mainly unaware public) can only help us in the long term.
It was always my intention to travel with Asa when he was older and he could take on more and better understand the world we live in.
As Asa's Father I have seen, in his short, life how much he has had to get through including over thirty hours of surgery. I have been watching as this has slowly taken hold of his body, but not his mind!
After the surgery in L.A two years ago Asa has really struggled with his balance, as the nerve on his right side was cut, and in turn his vision has deteriorated.
I spoke to Debbie and said the trip would have to be sooner rather than later, and after sitting down with Asa and planning the countries, we decided to go September 2004. We needed the all clear from all Asa's consultants from Southampton General, and I hoped Asa would stay well on the build up until the day we were leaving.
I had taken a year off from work and made the decision to sell my share of the company to help fund the trip.
We got the all clear from the consultants and went to Bath Travel to sort out the tickets for the round the world trip. Departing September 10th 2004. We spent nearly six months travelling the world and for Asa to do so much, and see the different cultures was everything I set out to do for him and more.
From Fast Water Canoeing in France, to the Huge Firework Displays in Germany, Gondola in Venice, Coliseum and Vatican in Rome, the Raw Beauty of Cyprus, the Boat Journey across to Egypt, the Pyramids and the feeling of sitting with Asa on one of them, and Asa being amazed by the treasures of Tutankhamen.
The Sunset across the Egyptian Desert, the Spiritual side of Japan and all the Temples, the Stunning South of Thailand and all the Islands and the Friendly People of Koh Samui, the elephant Trek, Asa shooting a gun at the range in Thailand, Swimming on Empty Beaches, Hiring a Boat and going to James Bond Island, Climbing Sydney Bridge, Snorkelling off the Barrier Reef, Skydiving at 10,000 feet, Sea Plane over Sydney Harbour, Driving down the Gold Coast, Camping in New Zealand, Whale Watching and Swimming with Dolphins, Hot Water Pools in the Mountains, Fast Water Boating on the Huka, standing next to the Fur Seals on the Pacific, Sky Tower in Auckland, Ice Bar, Antarctic Experience, Snow on a Mountain Pass, Kikora, a Town shadowed by Snow Topped Mountains, The Lush Green Plantation of Hawaii and the Lapping Ocean of Aqua Colours, the Whales so close to the Shore, the Red Jeep we took across Maui.
The Queen Mary at Lon Beach, Universal Studios, the lights of Las Vegas, the shows and excitement, the Music of New Orleans and so many buskers, the Hoverboats at the Florida Keys, the set up to Superbowl in Jacksonville, the Vintage Car Drive by, the Jet Car Ride which he loved in Old Town Florida, Niagara Falls, Sky Tower and that is just the Highlights of our amazing journey away for nearly six months.
We are now back and settling in again to everyday life. Asa has started High School but already has had two minor operations. He keeps going. He is Happy and Positive. That's all we ask for in him.
I know that the visions he has taken on this journey will hold strong forever and the experiences will help him as the future unfolds.
Paul Singleton
26 April 2005
From the Isle of Wight County Press: 17 December 2004
The family of 13-year-old Asa Singleton hope that by giving him the holiday of a lifetime he will be better able to fight the debilitating condition he suffers from.
Now almost completely blind and with tumours threatening his whole body, there is little doctors can do to control the condition, neurofibromatosis 2.
But Asa has always enjoyed being on holiday in the sunshine so his dad, Paul, has taken him on a trip around the world, ending up in Los Angeles where Asa will again meet his surgeon for another check-up.
They left the Island in September and plan to return home in February. Money from Asa's trust fund was used to pay for Asa's flights and Paul sold hist share of the business he built up, Ryde Demolition, to finance his part of the holiday and other expenses.
Asa's mum, Debbie, of Pellhurst Road Ryde, said:
'Asa looks on the outside as if he is doing well but his body is bad inside and his last scan results were not brilliant.
'His eyesight has really started to deteriorate and he cannot even read his watch face anymore. His balance is not very good and he has to lean on people to walk now, he cannot walk on his own. He is also losing the hearing in his good ear.
'We just want to do what we can for him in whatever time we have got. We told him he could go on holiday while he is OK and at the moment we are just giving him a good life.
'Hopefully one day there will be a miracle, you never know but he loves life and I think that will probably keep him going longer than the doctors will.'
Paul said: 'The whole trip was planned around Asa, who sat down with me and told me the countries he would like to visit. We have visited family in France, friends in Germany, been to Rome and Naples, family in Cyprus, visited the Pyramids in Egypt, then on to Japan, all around the south of Thailand, to Australia and then New Zealand.'
Among the highlights for Asa were a 10,000ft tandem jump from an aircraft, with a perfect landing, and climbing Sydney Harbour Bridge while wearing a safety harness.
They will fly to Hawaii for Christmas and in the new year Asa has his appointment with his surgeon in Los Angeles.
Before returning home they will stop off at Las Vegas, Florida and Canada.
Debbie and Asa's sister, Dominique, 16, hope to meet up with them in Florida.
Paul said: 'This has been an incredible journey for us and at times very emotional. Asa has done so much and as his father I am so proud of him and what he has achieved. Asa and I would like to wish everyone a happy Christmas.'
The Singleton family have pointed out that they have not authorised any carol singers to raise money for Asa's trust fund. They are concerned at reports that bogus callers have been collecting money for themselves and claiming it will go to Asa.
Paul and Asa in Egypt
Asa and his father, Paul are enjoying the holiday of a lifetime while Asa is fit enough to enjoy it.
The concept of trekking in Peru were put together with my good friend Paul Ronan. Paul has been closely involved with my goals for Asa, having previous experience in trekking in Africa, we decided Peru was the best challenge.
From a personal point of view, I wanted to do something for Asa that would be a competitive challange as well as finding the time in untouched surroundings to help find my inner feelings in this very difficult period.
We asked suitable people one by one to join us and we felt the team put together was the best, first the the funds to be raised and secondly to ensure the trekk would be a success.
Lee Daniels is Asa's step dad and a very good friend to me. This was also very personal to him. All of the details were put together by Paul Ronan, everything was organised in fine detail.
We started our journey on November 5th. After a long flight we arrived in Lima 24 hours after leaving the island. On arrival in Cuzco we were all amazed at the diference in oxygen levels due to the altitude which was 11,000 ft above sea level. We stayed in Cuzco for 48 hours which was needed before the trekk could begin.
We met our guide (Rolphie) 12 hours before the start and we couldn't have wished for a better person to lead us on the challenge ahead. At 7.30am we loaded our luggage onto the bus ready to meet the other guides and mule team.
It was a strange feeling being in the middle of nowhere with snow capped mountains towering above us as we sorted out our day bags (2 litres of water, wet gear, snacks, camera etc.). We started our first trekk at 10am. It was a clear day with everyone really excited about what was to come. For me I was very focused on what was ahead and felt very strong mentally. Within two hours a pattern deveoped within the team, all of us felt the steady climb. Rolphie himself was finding it very hard, to all our amazement, was sick and feeling the strain.
Over the next 5 days we wouldn't pass any other tourists, this was like passing through mountains and valleys where life and scenary would have been the same here 1000 years ago.
Our mule team consists of two mule men and two cooks. They worked very well together. Each day they set up camp, looked after the main bags, cooked our food which we all agreed was as good as some resturants. They would pack up again and pass us on the trekk and be set up again ready for the next night. Some of the people we did meet were children dressed in bright clothes and funny hats with grinded-in dirt covering them. They looked and stared. We would give them sweets and fruit from a day bags. It was fascinating to watch, they didn't have a clue what the sweets were and we had to put out hands to our mouths and show them.
The humour and the banter played a big part in the team, without doubt a bind was formed very early with us all which will stay with me for a long time. As the trekk took us higher we could all feel the strain of the altitude which for me consists of headaches, swollen eyes and sore throat.
However much I was hurting, I would thiunk of Asa and what he has been through and this would always push me on. When we reached the highest point (4,800 m) it was a great sense of achievement and everyone was very proud to have reached this point. I looked around and took in all the details and even now I can sit and shut my eyes and see all these points again. After taking many pictures and thanking all the team for getting to this point I decided I wanted to go up to a higher peak to leave a personal charm for Asa. It was only a personal thing but I needed to leave something there for him. I reached a point where I felt was the best place, sat their for what seemed a short time (it was about 30 minutes). A very emotional moment and the charm looks over a huge peak which I can only describe as the most spectacular sight I have ever seen.
Asa has mentioned to me beofre that when he dreams it is like everything is close up. At first I didn't understand then I realised that Asa sees best when he looks very close to something, so when he dream he sees the same as me and you. When I had my moment on the mountain I prayed that with the charm Asa could see the mountain as well.
After about an hour we set off again to begin the trekk around the mountain and desend to base camp for the night. As the altitude changes you see so many extrordinary plants, their colour are like nothing I have ever seen before - very vivid and luminous at times. The weather held out and we experienced another good nights rest at camp.
After reaching the highest point it was still three more days before we reached Machu-Picchu. We were walking the best part of 7-8 hours a day and by the 4th day everyone was feeling much stronger. As we weaved our way down through the moutain passes, the air became that mch better and to lose that throbbing head was such a refief.
At night we all sat in the dinner tent and played cards and generally relaxed. The last day in the mountains was one of the longest and also where we waw some spectacular sites. Various Inca ruins, some very difficult passes with sheer drops, water falls, stunning views looking to the Amazon.
We reached Machu Picchu late afternoon and were amazed at the sheer sight and size of it. What was very disapointing was that we had reached other travellers. After the solitude of our trekk it was strange to be back in the company of other people again.
One of the most memorable moments was when Lee Danields, Andy Leal and myself took on Wanu-Picchu, the mountain overlooking Macchu-Picchu. It was a real effort to reach the top, but once we reached the summit I personally was opverwhelemed with the realisation of what I has just achieved. I would never have thought I could do it. I thank Lee and Andy for their support and sharing those moments at the top.
We didn't have long before our flight down to the Amazon so we re-organised our bags so as to keep them light, as we would now be carrying them for 3 days.
It was total contrast stepping off the place deep in the Amazon, with a temperature of 102 and humidity of 98%. By the time we collected our bags, sweat covered my shirt and felt so uncomfortable. We then travelled by coach to the transfer point where a motorboat took us down the Amazon River for about 1 hour then a 5km trek to a canoe across the lake to our lodge. All our treks started at the lodge, normally one in the morning and one at night.
On a personal note, after the mountains, the trek in the Amazon Jungle wasn't my cup of tea and although i'm glad I extended the trip to there, I would in hindsight have preferred to trek 3 more days in the mountains. We met Toby and Kirsly at the lodge and I must thank them for their support with Asa.
The last day at the lodge was a night trek, something I was dreading due to my fear of snakes. We crossed the lake in canoes and started the 3km trek through the jungle, just as light was going down.
The noise is something I wont forget as you get this orchestra of sound from all the animals, birds etc. We all had torches and kept behind the guide. It wasn't long before we started seeing lizards, tarantulas, night monkeys and many different species of birds. A shout went out when someone found a snake, I think I stopped running after 150 meters and by the time I turned around there was no sign of light. I looked round and didn't know which was to walk. Lucky for me John Martin had noticed I had run by and had come to look for me straight away. I was very grateful for Johns support and we slowly proceeded towards the pick up point.
The journey home was long and boring, hours and hours of traveling. All of us had enjoyed the trip, I can't thank them enough fo their support and for making this trip a trip of a lifetime. Thanks again lads.
Paul Singleton
I leave for Peru on 5th November with 7 friends.
We have been planning this trek over the last few months. All of us have funded this trip ourselves and aim to raise as much as possible through sponsorship. We fly into Lima on the first day and are transferred up to Cusco for 2 days to acclimatize as it is 3,900 meters above sea level.
Our first part of the trek takes us through Papichu and Chilipahua and will all be around 4,000 meters above sea level. We will be trekking nearly every day for up to 8 hours and will go as high as 5,000 meters.
The trek will take us to Machu Picchu and from there we take the train back to Cusco and then transferred to the Amazon Basin. We will then trek and canoe for 3 days.
If you are interested in sponsoring, please contact us or send a cheque to:
Asa Singleton Trust Fund
54 Pellhurst Road
Ryde
Isle of Wight
PO33 3BP
England
Fancy getting into Warren Steele's leathers? No. not like that. Having his leathers as your very own.
Y'see, Wozza's trick armoured and vented Scorpion Husky PWR race leathers are up to grabs to the highest bidder. It's not because Warren's fallen on hard times, far from it. Rather the golden-hearted man of British supermoto wants to help raise the £60,000 needed to help send a Hampshire youngster to America for an urgent operation.
Warren met the plucky youngster [Asa] on a cross-channel ferry whilst en-route to a European SM round, and was so moved by his story that he decided to do something to help. And that's where you guys come in.
Many of Warren's race sponsors have come up trumps, supplying kit to be auctioned for the fund. There's a Lazer helmet, Spy goggles, a pair of Bridgestone tyres, and a trick Scorpion race pipe for your bike. A subscription to Supermoto Magazine is the icing on the cake.
We'll be starting the ball rolling with a donation to the fighting fund, while trackday specialists 100% Bikes have agreed to donate a share of the entry fee from each supermoto bike which signs up to future trackdays. And there's even talk of the S1 World Championship guys getting in on the act.
The is a great chance to help Warren kick-off his fundraising for Asa's life-changing operation, and we urge you to chip in. Simply place your sealed bids for any of the items mentioned (or a donation), in an envelope marked 'Wozza's Auction and send it to: Supermoto Magazine, PO Box 9845, London W13 9WO. Don't forget to include your name and contact details and let us know if you wish for your bid to remain confidential.
Reproduced with kind permission from Supermoto Magazine, Oct/Nov 2003
Visit the Supermoto Magazine website
We have just seen the doctors and have been told Asa has only a small amount of hearing after surgery if at all.We are completly devastated and in shock.I was so positive that this would turn out OK but now just numb.We have been told the second operation is not a option on the left ear as this could also effect Asa's good hearing side.We need time now to decide what to do next.
Message from Debbie:
Well what can I say,Im totally gutted.I felt so positive they could preserve some hearing,but thats just not to be the case.We now have to let nature take its course.The tumour on the left side is 1.8.cm and with no growth patern we dont know how long before it takes his hearing.When it does there is a chance of a cochlear implant,which would give Asa some degre of hearing.With all the prayers said around the world I wonder if there is anyone out there for him.This disease is evil,Its taken my sons vision,his sence of smell and now slowly taking his hearing.Asa has a 3cm tumour on his growth gland which is causing alarm with his consultants.Asa's strength and willpower is an inspiration to all us humans and he wont give in to this.Asa loves life and as his parents we can only hope and pray for a cure.
Message from Paul:
I dont know what to say except I feel so bad,I tried to take a positive route in trying to preserve Asas's hearing but have failed.I know so many people were there for Asa and I really thought for once Asa had won over this evil disease.I only wanted the normal things for my son,not more,Asa has not got a bad bone in his body and he deserves this break.He is my strentgh and as normal just takes this setback in his stride.Today we are down but tomorrow we will pick ourselves up and face this together,we cant and wont give up.
The Doctor now has said we can move over to Seton Care Centre where we will oversee Asa ourselves. We have all medication and Asa is really please to be able to get out. We take him back in a wheelchair and Asa want to get out and sit in the garden and sit in the sun.
A lot of cards have arrived from England and we spend time reading them all. Asa and I have played cards and watched a video (Meet the Parents).
The hospital is situated in down town LA - a gangland area, we are told not to go out walking at ngiht (a bit like Ryde!). The Doctors and staff are very informal and really pleased to be here to help us and we know that this is the best place in the world for hearing surgery.
Asa's team of consultants see him on a daily basis and keep us informed of everything. Many people from all over the world are here and also staff from all departments have visited Asa. Even in a huge population like Los Angeles, Asa still remains a celebrity. There have been radio interviews also invites to Universal Film Studios, and met some people from Baywatch. The love and caring from peple we have not met before has been so warm and something we will not forget.
People have stopped us and said we have a special person in Asa, something I already know.
- Paul Singleton
Asa was nauseous about 5am and given medication (IV line) at 7.30. He had some toast and bacon and felt ok. Asa's Doctor came in and gave him a brief ear test. There was a reaction but a small amount and we now hope over the next few weeks the area around the ear settles down and the hearing improves. The nerves are intact and that is positive news. Only time will tell the extent of Asa's hearing.
When Asa's bandage was removed on Sunday morning I held my breath. The wound is about 6 inches long and has 13 staples. The Doctor used a hearing key to try Asa's hearing, when asked if he could hear the tone Asa said 'yes' (YES!!!) - one of the most important moments in my life. I am trying to stay calm. Asa just doesnt react and is more worried that they have put staples in and asks how they are going to be removed!
After the Doctor has gone we start cleaning him up and start our own tests. We ask him to lay on the pillow on his good side ans atart talking to him and he is finding is hard to hear us.
I find the Doctor and he explains we must wait and see because the nerves are intact after surgery but now we have to wait to see if the blood supply will carry on to the hearing nerves (up to 4-6 weeks). The swelling around the area obviously is a facter also, so within a short time the emotions are back on the roller-coaster ride!
Asa has picked up fast and soon is on the circuit with the physios and making good progress.
Sunday PM - maybe a bit too much too soon as Asa is feeling nauseous and needs medication to settle him down. It must be so hard for him as the balance nerve has been cut and the body has to adjust. What with Asa's vision as well it must be twice as hard. Asa isnt eating much and the IV line remains in.
Just done another circuit of the LA Grand Prix (about 40 meter). too much, just been sick, medicine on its way. Slept a lot through the afternoon - Debbie not too sure on the extent of his hearing.
Asa's first game of 'Lanza', though this is my chance (card game, need to be good at maths). Asa WON!!!
5.50pm Shot of morphine - first pain refief for 12 hours. Sleeping well, last medication 10pm.
- Paul Singleton
Asa has now had his first operation and it went well. The next few days will determine the success of the opertion. He is doing well, and our thought stay with him over the next few days as he recovers.
Asa is flying today (29 Spetember) to LA for the first of his operations to save his hearing. Asa will be going to the House Ear Institue to work with Dr Brackman. The first operation will be on Thursday 2nd October at 12 noon.
We wish him all the luck, and look forward to his return soon.
A huge thank you to Big Al and The Doc from Isle of Wight Radio, who broadcast live from Wootton roundabout to support Asa's Big Day Out!†
The IW Council have now said that the signs can stay. Thanks to everyone who showed their support by 'honking' as you went by.
See you all on Sunday for the big day out!
IW Council have asked Debbie and Paul to remove signs advertising Asa's Big Day Out stating that it was advertising Swainston Manor.
Thanks to Alex Dyke & The Doc from IW Radio who jumped onto this story, and are even planning to stage a protest at the round-a-bout in question (along the Racecourse, Wootton) from 10.15 tommorrow (25 September).
We want as many people as possible to join them in this protest, and Asa himself is hoping to be there too.
If you can't make it, please register you protest in the Guestbook and we will start a petition.
Alex Dyke & The Doc are hoping to broadcast live from the round-a-bout
Newport Round Table have organised a Dinner Dance and Charitable Auction in aid of the Asa Singleton Trust Fund on Saturday 27 September 2003.
Kevin Daniels, who has organised the event has also kindly agreed to officially launch www.helpasa.co.uk on the same night.
Watch this space for more news of the event.
Nine of us will pay for ourselves to trek through Peru and the Amazon, this will be no holiday, as we will be treking up to 6 - 8 hours a day. Trekking through through the Inca Trail up to Machu Pichu (altitude of 15,500 ft) then down to the Amazon Jungle, trek and canoe.
We are seeking to raise as much money as possible through sponsorship towards Asa's operation.
Peru
One of the places we will be treking to.
All donation and sponsorships will be acknowledged in the IW County Press
Asa was born on the 2nd May 1991, and like his sister Dominique, seemed a bright bouncy baby full of life, vitality and vigour. However after only a few short weeks it became apparent that he had some form of deficiency with his eyesight, as he was unable to focus his attention on any specific object for even the shortest length of time.
As a precautionary measure he was referred to a specialist, and tragically,
having undergone a series of consultations and tests at Great Ormond Street
Hospital was diagnosed as suffering from a genetic disease called Neurofibromatosis
2 (NF2).
This disease affects 1 in 40,000 people and is as yet incurable and potentially
life-threatening. Research is ongoing and they have isolated the faulty gene,
but it is in very early stages and we all know how long these things can take.
MRI scans soon detected that not only did Asa have tumours, but also optic glimoa
and an acute abnormality in this left eye.
So far, Asa has had to endure two major operations, the first of which when
he was only 5 years old. The first to remove the tumour from his optic nerve,
the second to remove a tumour dangerously close to this upper spinal cord. This
is without the frequent tests, scans, probes, and Asa's worst nightmare, blood
tests and injections!
The last couple of years have been good ones for Asa and his family, despite the diagnosis of a hormone imbalance caused by a tumour on his pituitary gland, for which he has nightly injections. The annual scan showed that the tumours found on his lower spinal cord and his acoustic nerves hadn't changed, but this was too short a respite for everyone, as the latest scan has shown the growth of the acoustic tumours to be virulent enough to cause major concern for his hearing. Having recently seen the ENT surgeon, it would seem that unfortunately surgeons in Britain would be unable to do the 9-hour operation (per ear) and save Asa even a partial amount of his very valuable hearing. Asa's parents have decided that this is something they are not prepared to let happen unless there is no other way, and are currently seeking opinions from surgeons in America and France who have more specialised resources at hand. Another option may be to have an operation, not to remove the tumours, but to shrink them with radiation, (Gamma knife procedures) but this holds its own problems and uncertainties both for Asa's hearing and the long term affects of having been exposed to radiation (cancer). All this is necessary though to try and preserve one of the only major senses Asa has left. No one would like to imagine a life of blackness and silence but this is what the future could hold for a wonderfully brave little boy, unless Asa and his parents can see and talk to the necessary experts in this field.
This story paints a bleak picture for anyone who does not have the good fortune to have Asa as a part of their life, be it family or friends (of which he has too many to count!). But to know Asa is to love him, his energy, his love of life and his almost constant optimistic outlook on everything around him, not only his own problems but others too, is an inspiration to everyone. Asa is registered blind and currently attends full time mainstream school, with the aid of a full time assistant, and partakes in all activities he can. He is very intelligent and absolutely refuses to allow his disabilities to hinder him. He has had various hobbies over the years, which include motorbikes, as a passenger and riding them (until he drove it through his Nan's greenhouse!!!), playing the electric guitar, his Playstation 2 and James Bond (especially the gadgets) to name but a few.
However, despite Asa's fortitude and resilience in battling against such overwhelming odds, and even after the decision of what will happen to his acoustic tumours has been made, his illness will always be ongoing and progressive. Although he has a dedicated team of surgeons, doctors and nurses looking after him, they are "writing the book" as they go due to the fact that Asa is very rare in that he was born with symptoms of NF2. Sufferers do not usually display symptoms until their early teens. They are also always aware that Asa's condition could deteriorate at any time and leave him not only blind and deaf but claim his life.
Naturally we all try to remain optimistic, but this becomes increasingly hard when there is always another tumour casting a dark shadow over us. Asa's Dad (Paul) has taken a year off from work in light of these new developments in order to try and raise funds for what will be a very costly, but ultimately worthwhile cause. Namely, let a little boy enjoy his life as best he can. Our major concern now, as time is of the essence, is to raise enough money for Asa and his parents to travel, stay, pay for consultations and surgery abroad. All we can do is wait and hope that someone will be able to give Asa the thing he wants more than anything in the world, his hearing.
There are several ways you can help.
We are currently applying for charitable status for the Asa singleton Trust Fund. Once this has been processed you will be able to make donations online using your debit or credit card. Through WorldPay we will accept all Visa, MasterCard, Switch, American Express, JCB, Diners, Laser and Electron cards.
Make a donation by cheque by sending it to 54 Pellhurst Road, Ryde, Isle of Wight, PO33 3BP. Please make cheques payable to 'Asa Singleton Trust Fund'.
Organise you own event to raise money for Asa. Some of the events people having been organising are Art & Craft Auctions, Jumble Sales, even a sponsored trek to Peru.
This is not a big charity; we are just family and friends trying to do our best. Everyone's donation counts, so please don't think yours wont make a difference, it does!
A very big Thank You to everyone who has supported Asa. Some have given time or materials, and some have donated anonymously.
Here is a list of those who we know have supported Asa.
A T Gilliam
Abbey National (Ryde)
Abigail Johnson
Alan Jones Heating
AllDays (Ryde, I.W.)
Amazon World
Appley Cafe
Appley Cafe
Arreton Barns
Ashley Sinclair
Biffa
Biltmore Printers
Bishop Lovett School
Black Rock Insurance
Boots (Ryde, I.W.)
Burts Motocycles
Candy Box (Ryde)
Chicago Rock
Chick 'o' Land
Copper Kettle (Seaview)
Cristie Mathews
D. Holbrook
D.N. Associates
David Stores
Day & Evening (Ryde, I.W.)
Dennis Saxcoburg
Derrick White
Edmunsons Electrical
Elizabeth Wright
Esplanade Hotel
F.W. Marsh
Fairlee Garage
Falcon Inn
FatCat Enterprises (Ryde)
Freight Transport Ltd
G. Allen Builders
G. J. Banks
G. P. Laminates
Gladrags
Glenhurst School
Greenhams Newsagents
Grist Electronics
GTI Windows
Gully Howard
Hayes Samuel
Highfield House (Ryde)
I.T.S. Tools
I.W. College
I.W. Council
I.W. County Press
I.W. Honda Owners Club
I.W. Radio
I.W. Scrabble Club
James Bartholemew
Jason Shipley
John Martin Builders
Just (Newport, I.W.)
Just (Ryde, I.W.)
Kempton Construction
Kings Garage
La Grande Mare Golf Club
Mace
Mark King
Martin Glover
Marvins
Mel Parratt
New Inn (Shalfleet)
Newport Round Table
P J C Glazing
Paktron Limited Electrical Contractors
Palmers
Paul Higgins
Paul Ronan (Roofing)
Portico Theatre
Reynolds & Read
RGM Scaffolding
Roberts & Starkey Builders
Rumours Hairdressers
Ryde Firestation
Ryde Rotary Club
Ryde Tool Hire
Ryde Trampolines
Ryde Youth Club
Shanklin Golf Club
Shannon Jenner
Sherring Coaches
Shipmates
Simply Shakes
Specsavers
St Johns Lazers
Steve Jarvis
Stoneham Construction
Stubbings Bros
Supermoto Magazine
The Bugal (Brading)
Top of the town cafe (Newport)
Vanners
Wakes Superstore
Weaver Bros
White Lion (Arreton)
White Windows
Wight Players
Wishing Well
Woodnutts
Woolworths
Wootton Tyres
Wrights
Yarbridge Inn
20-04-2004
The Victoria Tavern Presents:
A DARTS EXTRAVAGANZA
with:
TRINA GULLIVER
4 Times World Champion, 1st Ever Winner of the BDO Grand Slam
MARTIN ADAMS
Captain of the England Team, 4 Times World Cup Winners
MERVYN KING
Twice BDO World Professional Finalist, Current World Cup Pairs Champion
Saturday 10th April 2004
7.30pm for 8.00pm Start
Celebrities will be challenged by 24 Island players; 10 to be selected by knock-out competitions at various venues to be announced, 2 to be selected from a lucky programme draw on the night.
All Proceeds to the Asa Singleton Trust Fund
Cost:Entry by Programme - £2.00
Contact:Further details from Wayne Stevens - 01983 295961 / 07708 011371
<br />
The Victoria Tavern, Clarence Road, East Cowes, Isle of WIght, PO32 6ET
Links to images in the gallery will open in a new window.
Another picture of me and my sister
This old rope swing is great. Keeping my balance is a bit tricky though.
When I heard I had to go in for a special operation, I'm not sure I understood them properly!
I like this picture of me and my sister. Dominique has been a huge support to me.
This is me bungee jumping. And I thought my operations were scary!!!!!
Hi everyone,
just to let you know that the documentary now has a myspace page www.myspace.com/this_is_asa
Go take a look and WATCH the Trailer!!
Posted by simon
Posted on 16-10-2006
hello Asa, my name is mark,I too have NF2. In seventh grade a girl threw a book at me for teasing her. well, the seventh grade history book hit my behind my left ear leaving a bump. But thr bump never went away and that's when the strange pains in my head started..long story short nine different doctors told my that my lump was just a fatty cist it wasn't causing the pains & thaatit was only superficial. finally two years ago (after suffering whith the various pains,slowed reflex's numbness in my shins,fingers, & face) I was taken seriously whe my left eye went crossed for now reason. well there was a reason but the doctors still couldn't figure out what my problem was they thought I looded perfectly healthy for my age. I said no I'm not your eye doesn't just go crossed for no reason and I wasn't leaving the E.R. until I had a C.A.T. scan. They told me "well Mr. Duff that's going to cost you $1,000 dollers, out of my pocket because I didn't have insurence at the time. I agreed, got the scan only to be moved out of the E.R.and then told that I probubly had cistic sarcosis(an abnormal amount of calicum deposits in my brain,or some kind of parasite from eating undercooked pork. The doctor on duty wanted to send me to County USC hospital in LA but I said no thank you by this time it was9:30 on a friday night I was not spending the weekend in the hospital. two months later I got insurence and a MRI three weeks after that I was on thr operating table having 1 Orange (the fruit) sized tumor removed from my brain.I also , after recovering from the 1st surgery had four more removed from between the base of my skull and C-1 ,C-2 and C-2,C-3 that were pinching the blood flow to my brain. It's time for me to go back and get another one removed.. Asa I feel your pain,the ones that we find hard to explain to those who havent walked in our shoes my preyers's are with you and your family. PS your not alone:)
Posted by markymapoe@yahoo.com
Posted on 15-08-2006
Posted by
Posted on 08-08-2006
alright mate its nuts.. i got a new clutch in the scooby now and a performance air filter!!! thats put a few more horses under the bonnet! let me know when your coming for a test drive! and when card school is!! nayhh very good. nuts
Posted by nuts
Posted on 01-07-2006
I meant to say...
www.myspace.com/wwwhelpasacouk
- NO DOTS!!! (A myspace thing).
Posted by Rick
Posted on 19-06-2006
Hi Asa and family,
I remember reading your story in the national papers and it struck a chord with me as my father has NF2 which has left him deaf and I too have a very mild form that may one day leave me deaf also, however, this is nothing to what you have been through and are experiencing, you are a true inspiraton and you must keep smiling always little soldier - keep bouncing on that trampoline too that sounds truly fun.........I will be thinking of you every day and will visit your site often now I have found it.
Take care - all my love and best wishes from Anna xx
Posted by Anna Fleckney
Posted on 04-05-2006
You at the festival this year Asa?
Posted by Fezzieman!
Posted on 11-04-2006
Hi Asa, Paul and Debbie and Dominique too! I just wanted to look you up and see whats up with you! This is a big hello from Jody at St.Vincent Medical Center/Seton Guest CEnter, Los Angeles. I miss you guys. how is you music going!? I just read about you loving Ozzy Osbourne
hhhmmm... keep on dreaming my friend. COngratulations on your Baptism, that is als
Posted by
Posted on 28-03-2006
oooppppssss.. I hit save before I was done... anyways my best to you and my prayers always include you and you being able to fulfill your dreams and handle any future surgeries with little pain. I am here if you ever need to ask questions or coem back to L.A.
Be strong!
Posted by Jody Spector, St. Vincent MEdical CEnter, Los ANgles, California
Posted on 28-03-2006
hi asa,
You have inspired a lot of people and indeed tou have such a strong will power. Hang in there boy, my prayers and thoughts are with you.
Posted by unknown
Posted on 27-03-2006
I am Noel D Pinto i am from the Phillippines. I to have neurofibromatosis, all over the body. i have the loving care and support of my family.
Posted by pintonoel55@yahoo.com
Posted on 09-03-2006
Hi Julie,
Dont worry if you missed the NBC slot. We have plans for world domination once the documentary is up and running!! Hopefully you will see alot more of Asa and hear alot more about NF2.
Thanks for your support and love to Parker. He looks adorable.xx
Posted by Simon (Skygod Films)
Posted on 23-02-2006
Hi Asa! I heard you shared your story on the US NBC morning show! Wish I would have seen it. My 8 year old son also has NF2, spontaneous mutation. Thanks for your efforts to spread awareness. Praying for your healing Asa!
Posted by Julie - Parker's mom www.runforparker.com
Posted on 22-02-2006
Asa,
Make a wish
and it will come true!
Happy 2006!
Posted by Bryan
Posted on 31-12-2005
Merry xmas and a Happy New Year.
Thankyou for all the messages and support over the last year.love Asa
Posted by Asa
Posted on 24-12-2005
Merry Christmas and Happy New Year. Wish you and your family the best.
Posted by Bryan
Posted on 24-12-2005
Best of luck Asa
Posted by A well wisher
Posted on 20-12-2005
alright little feller still thinking of you dude, if i dont see ya have a top chrimbo and i will see ya early in the new year.
Posted by clinto
Posted on 11-12-2005
Asa I heard about you from my neice Keisha from Malaysia and she urged me to drop a message on your blog site. I know you have been a fantastic boost for Keisha's morale and for that we are all extremely gretaful! Best wishes keep up the good work!
Warmest regards Phil Read Architect you can contact me at: phil.read@dubaifestivalcity.com;
Posted by Philip Read Dubai, UAE
Posted on 23-11-2005
Asa,
I to, have nf, but i have nf1. You are in my prayers and all. I seen your story and thought about how strong you are. god bless you
Posted by henry
Posted on 02-11-2005
Hello Asa :-)
I¥m Paul from the Starsailor Message Board.
"One sees clearly only with the heart. Anything essential is invisible to the eyes."
It`s from my favourite book, The Little Prince and when I heard of you I remember this wonderful sentence.
I¥m thinking of you and send you some magic star dust.
Paul StarSailor :-)
Posted by
Posted on 19-10-2005
Asa,you are an inpspiration to not only me, but so many others. Others that are suffering as well, and that have lost hope. Hope is something you must never let anyone take away from you. Be strong.
Posted by Clairebert, a Starsailor fan from Canada.
Posted on 18-10-2005
Hello Asa
I just saw your picture with Barry and Ben from Starsailor - it's a wonderfull picture !!!!!
There's a candle burning here, with that I send you light , strength and warmth.
Good luck !!!
Posted by Tonny - a Starsailorfan from Holland
Posted on 17-10-2005
Good luck Asa - Dorothy Lang operated on me in March 2003- and her part in your treatment will be invaluable - I hope there will be some good new soon
Posted by jane.2203@ntlworld.com
Posted on 11-10-2005
Hi Asa
Elaine (my wife) is coming to see you this afternoon-to tell you about the New York Marathon were running for you. Im back onshore next week so I hope to meet you too.
Graham
Posted by doveg@bp.com
Posted on 16-09-2005
Hello every1, Asa here. Just to say thanks for all your support and messages.
Word.
Asa
Posted by Asa
Posted on 15-09-2005
Hello Asa.
Just wondered how you were doing. I know your Uncle Ross and he lets me know how you are from time to time.
Just wanted to drop a note to say that I admire your out look on life, that you are living it to the fullest and doing things that I would not have the nerve to do i.e. jumping out of planes. You seem to be one hell of a guy and your determination to enjoy life is an inspiration to us all.
How is the guitar playing going?
Keep smiling!
Posted by Clayre
Posted on 17-07-2005
Hi Asa,
I'm from the farrrrrr east.... in southeast Asia- Malaysia. I found out about you through The National Enquirer. I have NF 2 as well. I know how tough it can be to live with NF but you have an absolutely amazing dad. I wish I had one just like yours! Unlike the US, NF is not really known here so it makes it extra difficult for me to live a normal life. But I make the most out of it and I'm definitely inspired by your strength anf courage to battle this life-threatening disease. I REALLY WISH I had half the strength you have. I hope everything goes well for you. You can email me anytime if you like keisha_lfc@hotmail.com
Posted by Keisha K S.
Posted on 13-07-2005
Hi Asa,
I am praying for you. God loves you.
Posted by Wanda
Posted on 30-06-2005
I also have nf2, I know its hard to live with and I just wanted to say thank you for your story.It helps me through the day to, know we can live a happy life. Thank for being strong.
Posted by chris
Posted on 29-06-2005
Hello, Asa!
I stumbled on this website accidentally and could not stop looking until I had finished. Just wanted to say that your parents must be very proud of you and the strength of your character. If you ever come to Atlanta, GA in the United States, you'll have to look me up. We could go to Six Flags over GA. I have two boys that are 17 and 14. God bless you, and keep your chin up!!
Posted by melanie.odom@stagparkway.com
Posted on 21-06-2005
Hello little one. I have nf2 as well and I know how you feel. Remember that you are the one who determines how you want to live. Live life to the fullest!
Posted by www.yvonnefoong.com
Posted on 18-06-2005
Best wishes from the States Asa. God knows how special you are! We all know how brave you are! I wish you the best of luck in your wonderful life to come!
Posted by Bruce Campbell --Seattle, USA
Posted on 16-06-2005
All the best! Somehow you're not fighting alone, little friend. We're all here thinking of you.
Bobber
Posted by Bobber
Posted on 16-06-2005
Hi Asa
Hope you had a great time at the IOW festival mate, it was a pleasure to meet you. Hope you had a great time mingling with the stars backstage and managed to get that elusive photo of Michael Stipe!
All the best for the future mate,
Jamie (mate of Lee's)
Posted by
Posted on 15-06-2005
How proud your parents must be to have such a wonderful son. I'll be praying that you beat this.
Posted by michael
Posted on 15-06-2005
hi stumbled over this web site by pure accident, but it's content of strengh courage and determination by a young man had me hooked.
there isnt much i can say that anyone else hasn't said already, but every day troubles and woes fade into insignificence at your bravery Asa.
a message for Deb and Paul - you may not remember me (was paul gullivers girlfriend in late 90's (Jackie Perkins)i had the pleasure of meeting Asa at BBQ's and the like when i lived in Ryde, those short encounters with Asa have left thier mark - he is zest in life its self. thinking of you all
Posted by Jackie Perkins
Posted on 11-06-2005
Asa:
I pray for you young man,that the Lord in wonderful mercy and grace will restore and heal your body.Blessed Savior please heal and restore Asa.In the name of our Lord and Savior Jesus Christ.Amen
Posted by deborahrose96@hotmail.com
Posted on 30-05-2005
Hi Asa!
I've recently seen your story on German Television. I really hope that you will quickly find a cure to stop your disease. I was also very impressed about your force and strength to fight against it.
And when I saw your World Tour, I hardly could believe that a boy in your age is able to enjoy life so much despite the injustice you have to suffer...
I wish good luck to you and your family!!! PS: Sorry for my bad English ;)
Posted by Michel
Posted on 26-05-2005
Hi Asa,
I saw your story on the Today Show in NYC. I was truly inspired and touched by your story. You are an amazing boy and you have a wonderful family. Hang in there and keep living life to it's fullest. You are in my thoughts and prayers.
Posted by Marisa from Boston
Posted on 25-05-2005
Hi Asa and Family
I've seen a report about you in german tv today. I was very interested in it, because I do also have this illnes Neurofibromatosis 2.
I don't know if you've ever heard of Mandjid Samii, the doctor i was staying. people from all over the world come to his hospital. maybe ou should try to go there (http://www.ini-hannover.de/en/welcome.htm)?
please excuse my poor english, and much luck, whatever will be.
simon
Posted by simon
Posted on 25-05-2005
hello Asa, I'm sorry to hear about your illness, Ihope they can do something for you as it seems such a shame for a boy so young to be so debillitated[hope somebody can explain that word to you]. I wish you health and will say a prayer for you[every day] from now. Take care young Asa till the next time. bye for now, if you can you can talk to me on msn messenger that would be great[sorry, maybe your mum or dad can write for you, if thats ok] or maybe an e-mail ok, bye for now from Lynne
Posted by lynnepinner@hotmail.co.uk
Posted on 24-05-2005
Asa and family,
I was so touched by your story and your "Live foe Today" advanture. My lifetime goal is to visit all the continents. Thanks for sharing your adventures with us. I'll keep you inmy thoughts and prayers.
Sincerely,
Lisa Olaynack
Posted by Lisa Olaynack
Posted on 23-05-2005
"For I know the plans I have for you, declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future..."
Jeremiah 29:11-14a
Posted by
Posted on 20-05-2005
May God watch over you and your family. You have a lot of courage and that is what helps you get through each day. Keep it up. You are obviously loved by many people.
Posted by Karen and family
Posted on 17-05-2005
you are in our prayers!!! Give thanks to the Lord each day! LOOK UP! There is peace in looking up!
Posted by kgoree
Posted on 15-05-2005
hiya asa,
hope all is ok,
we hear you hav been nyc
wasa it good ?
take care
Posted by from the maths class and james
Posted on 13-05-2005
Asa, glad Rick dropped us a line and I had the chance to write you. You sound like an amzing person and I wish I had the chance to meet you personaly. God bless!
Posted by Tkitna
Posted on 12-05-2005
Hers a weblink to the Today Show that Asa Appeared on.
My Flash player does not work but it should be ok for most of you. ;o)
http://www.msnbc.msn.com/id/7632606/
Posted by Rickus
Posted on 12-05-2005
Asa, I wish you all the very best, stay strong.
Posted by Bruno
Posted on 12-05-2005
hey buddy what is shaking?rick said i should come by and rattle you chains.i am glad that your condition has not worsened and hope that you will be here in about 50 years so we can both see his band sell a million copies.....and maybe then he will be recognized for more than just clean floors...
grease for peace dude.
Posted by pc31 moondog at large
Posted on 11-05-2005
Hey Asa.... Im one of Jimbob's mates! Hope u r well and taking care. I hear u gave a star appearance on tele, shame i missed it. And i hear u recieved a new shiny guitar too.
Well it is great to hear u r doin great and carry on the way u r coz ur an inspiration 2 everyone.
Posted by Naomi xx
Posted on 11-05-2005
hi ASA We have been following your adventures, read about you in the newspapers and watched you on TV. We are very proud of the courage that you have shown and assure you that you are always in our thoughts. Hope you had a good birthday All our love David and Audrey.
Posted by David & Audrey Joshua
Posted on 11-05-2005
Hi All.
First of all I would like to thank all of you who have left messages for Asa. It is of great comfort to know so many people accross the world care. Asa is really glad to have been able to bring this condition to so many people accross the world
and in turn we can only hope that in time more funding for research will be forthcoming. Today in the UK Asa's story has been printed in the Daily Mail. We have had many phone calls from TV networks wanting to do follow on documentrys. I will sit down with Asa and see which direction to take next. Asa has just got his phone upgraded today and also busy with his IPod.The interview with ET in America has not been shown yet, but will shortly.Will keep you posted.Asa has a lot of appointments in the next few weeks, Consultants etc.
Please stay in touch.
Posted by Paul Singleton. (Dad)
Posted on 11-05-2005
Asa, I just saw you on the Today Show and I have been so moved by your story. You are an inspiration. Whenever things seem too tough to handle, you will always be able to go back and relive your recent adventures in your mind and that is priceless. As a side note, I hope you absolutely loved Egypt! I used to live there and I would go back in a heartbeat. Good luck to you and your family!
Posted by Jessica in Texas
Posted on 11-05-2005
Asa,
god bless you and your family. You are an inspiration to us all. :) Knoxville, TN
Posted by Lisa "Chilly"
Posted on 11-05-2005
Just passing on details as discussed on telephone earlier - a BA captain, Stratton Richey, runs a charity called BA High Flight which takes children gliding. He phoned me to see if Asa would like to go. His number is 01233 756366. website is highflight.info
Posted by David Wilkes
Posted on 11-05-2005
I'm so inspired by your courage, Asa. Keep on keepin on. Have you and your family sought help from the House Clinic in Los Angeles for your hearing? Might be worth a try. You're an amazing young man.
Posted by Ojai friend
Posted on 11-05-2005
May God Bless both of you. I am a 31 year old Mother who has NF2 and my 11 year old son Josh was diagnosed 1 year ago. Josh had catract surgrey when he was 7 and is doing well now. His vision is 20/200 in that eye but he can see things at 20/50 up close. I have found that God has been my inspiration and strength through this all. I also have had 1 surgrey and lost hearing in my left ear and my balance nerve. If you ever need a great bunch of people to talk to or information there is a NF2 weebsite that is good. It is the NF2_CREW. search it on the web thats how we heard about you and the Morning Show. Well Good Luck in All and You Will Be in My Prayers.
Posted by Kim vacgirl710
Posted on 10-05-2005
god bles you ASA, *hugs* =^_^= take care
Posted by Sie
Posted on 10-05-2005
Asa,
Saw your Today Show story this a.m. and was truly touched by both you and your family. You are wise beyond your years as was evident in your replies and comments especially after viewing Ground Zero. Thoughts & prayers are with you and continued support for a cure on your condition. Come visit Houston, TX!!!
Posted by S Jensen
Posted on 10-05-2005
all the best ......and if theres ever anything i can do just say . ure doing so well keep it up.ure an inspiration to so many people xxxxxxxxxxxxx
Posted by yolanda
Posted on 10-05-2005
yo ASA
hows it shakin bacon ?
i hear you were a star on the telly and cant wait to see it!
hope you had a nice time.
the G-tar look cool,and look foward to hearin your "chart topping song". take care and see ya soon.
Posted by James
Posted on 10-05-2005
I saw you on the Today Show...you are an inspiration and motivate me to live each day to the fullest. Thank you and God Bless you.
Posted by Liz in Florida
Posted on 10-05-2005
Hi Asa!
Greetings from The End at DM's Beatle Forum. Our thoughts and prayers are with you.
All the best mate.
Posted by AL
Posted on 10-05-2005
I have a 6 year old son, who means the world to me as you do to your mom. I told my son about you and he suggested that we pray to God every night to help your condition.
So the last prayer every night will be for you Asa.
Terrie Welsh
Bordentown, NJ
Posted by Terrie Welsh
Posted on 09-05-2005
Great to see so many posts from all over the world!!! Keep posting people!! Lets get this message board moving!
All The Best Asa!
Strength, Courage and Wisdom to everyone!
Posted by Spread The Word!!!
Posted on 09-05-2005
Peace and Love Asa!
Thinking of You
Posted by Beatle-Lover
Posted on 09-05-2005
You are an inspiration to all of us! Keep fighting the good fight! I know if you can make it, other kids can make it too.
Posted by Mairi Macdonald
Posted on 09-05-2005
You are truly an inspiration and remind all of us that no matter what problems life may throw at us, we should always view the glass half-full and live life to the maximum.
You're a brave lad for not giving up and I wish you the best.
Posted by Ruben An
Posted on 09-05-2005
Hello Asa,
My name is Anson from Hong Kong. First of all, sorry for my poor English. I read your news in Hong Kong newspaper and knew your father want to show you evrywhere in the world. Have you visit Hong Kong during your wrold trip ? Do you interest any sight seeing spot in Hong Kong which I can show you. Take care.
Posted by ansonng@netvigator.com
Posted on 08-05-2005
i would just like to thank everyone in america who had any part to do with asa coming to new york i know he had a rememberable time with you all we are all very gratefull for all of your support,thoughts & prayers many thanks
Posted by
Posted on 08-05-2005
Welcome Home Asa! Can't wait for a full update on your recent experiences. When's the poker chips coming out?
See you soon bud. ;o)
Posted by Rickus
Posted on 08-05-2005
Asa,
My Mom & I saw you on the Today Show. We are so happy that you have gone on so many great adventures to see the world. We have said a special prayer for you and wish you the very best.
Stay Cool!
Posted by Taron Long - 8 yrs old - Louisville, KY
Posted on 07-05-2005
Hi Asa! Our dad is the police officer that showed you around Ground Zero. He talked about you a lot yesterday and we were happy to see you on TV today. Thinking of you and your wonderful family.
Posted by Alexa and Christopher B.
Posted on 07-05-2005
i did watch the show on this beautiful child....right now in my own life like all i have some problems...bnut after watching this child life life fully with love and energy...i think my problems are not really all that bad....i have great vision but maybe not as great as his!...with love from my heart to yours Asa...John
Posted by John B. Kane jbkchaos@yahoo.com
Posted on 07-05-2005
Posted by
Posted on 06-05-2005
Dear Asa
I love you brave boy, don't
worry, be happy. Everything
will go away, tomorrow is a
new day.
Posted by Liu Maggie from Hong Kong
Posted on 06-05-2005
Hi Asa! My name is Rodney. I am a 37 year old Father of 2 boys. I just saw your story on Live for Today. I think you are a true inspiration to everybody and what your parents are doing for you words can't describe. I think you getting to see all those places in truly wonderfull. I wish you and your parents the best of luck and I hope you continue to see many places and have more fun with each visit. Take care, be safe, and god bless. Rodney Quick, New York
Posted by Rodney
Posted on 06-05-2005
I saw your story on the Today show this morning and I think that what you are doing is truly an inspiration! As a mother of a 12 yr old son with Tuberous Sclerosis Complex(TSC)I feel I can fully appreciate the love and dedication it takes to ensure that our precious angels live the best and fullest lives imaginable. May God continue to bless you and keep you.
Posted by Rebecca Weber (Maine)
Posted on 06-05-2005
Dear Asa, I saw you on the Today show this morning and you are an amazing young boy. God Bless you and you will be an inspiration for alot of people to live up to. Your story touched my heart. Many prayers to you and your family, who are just wonderful too.
Posted by Tanya in Georgia, USA
Posted on 06-05-2005
Dear Asa,
I also just saw your story the Today Show this morning. There aren't words to express how your story touched my heart. You are an amazing young man...a true inspiration. And your parents...they exemplify the love of a parent...in every way. Be safe in your journey. ENJOY LIFE!
Sincerely,
Posted by Danielle (MI, USA)
Posted on 06-05-2005
Dear Asa,
I am an English lady with 3 children living here in the United States. I just saw your inspirational story on The Today Show. You are truly a remarkable young man blessed with loving parents and wonderful friends. May God protect you and keep you as you continue through this incredible journey!!
We will keep you in our thoughts and prayers!
Tell your Mum and Dad that we all think they are amazing too!!!
Posted by Jo Greenshields
Posted on 06-05-2005
Dear Asa,
Please know, you and your family are such an inspiration. You are so incredible with the way you are dealing with your disease, it should make each & every one of us stop & think of the inconsequental "problems" we complain about daily. I know you already realize how lucky you are to have the parents that you do. My thoughts & prayers are with you and your family.
Posted by Linda - - New Bern, NC
Posted on 06-05-2005
I saw you this morning on the Today Show and think what you are doing is wonderful. What a spirit you have. What wonderful parents - I will pray for you and your journey.
Posted by Beverly - Houston, Texas
Posted on 06-05-2005
Dear Asa,
You are truly an amazing young man and I know the Lord has plans for you. You have been everywhere! You touched many hearts when you prayed at Ground Zero. You are selfless and I promise to commit to pray for you for strength and for healing. I will never forget your story. Keep your faith strong. Your parents are an inspiration to me too.
Posted by Sherry Havira-Huntsville, AL
Posted on 06-05-2005
Dear Asa,
You are truly an amazing young man and I know the Lord has plans for you. You have been everywhere! You touched many hearts when you prayed at Ground Zero. You are selfless and I promise to commit to pray for you for strength and for healing. I will never forget your story. Keep your faith strong. Your parents are an inspiration to me too.
Posted by Sherry Havira-Huntsville, AL
Posted on 06-05-2005
You're an inspiration, and I wish you all the best! Loved seeing the pictures and all the fun things you have done! I didn't get to see the show, b/c I didn't know about it, but maybe tonight I will catch you on the other show. My partner has NF2 and like you he never lets it slow him down. His motto: "I may have NF2, but it doesn't have me!"
Prayers and love to you!
Posted by An NF2 Friend
Posted on 06-05-2005
Hi ASA How are you? Hope your doing good.I belong to a yahoo group called nf2crew and we are at www.nf2crew.org and its people all over the world that have nf2 which is so very rare.We talk to each other and your family is more than welcome to join.Think positive .Take care we will be thinking of you.:)
Posted by Laura Pereyra
Posted on 06-05-2005
Asa,
I saw you on the Today show adn think you are an amazing person. You are fortunate to have such loving, generous parents. They remind me of my own parents who passed away a few years ago. i wish more people in the world had your family's spirit. You prove that the soul is what makes us human. Good luck to you!
Posted by linda_monaghan@yahoo.com
Posted on 06-05-2005
I, like many others, saw your story on the Today show this morning - your heart & spirit is so inspirational. I hope your journey is more than you ever dreamed & gives you many memories to sustain you through the years to come. God bless you & your family!!
Posted by Karen, Tottenham, Ontario, Canada
Posted on 06-05-2005
Greetings from the Pacific Northwest! It was so nice to see you on the Today Show, I truly enjoyed watching you enjoy your trips all over the world and sky-diving. Hope you're having fun. Thanks for making my day! And know that many of us are praying for you.
Posted by Anna - Seattle, Washington
Posted on 06-05-2005
Hello Asa! I saw you this morning on the Today Show. I am teaching my students about genetics and as part of the introduction we are reading your story. You are a very brave young man. Thank you for making us aware of this condition.
Posted by Rob Harmening
Posted on 06-05-2005
hello Asa, i read about you on the Internet. I like you have the Nf1. I admire your courage & strenghth. May God keep you in His loving care.
Posted by ralph in miami
Posted on 06-05-2005
Asa- you are an inspiration to all of us. When we read stories such as yours it makes me remember just how lucky I am.
If I knew how to do surgery I would for you.
God Bless,
Wendy
Posted by wendy
Posted on 06-05-2005
Dear Asa - Keep the spirit and joy you bring in to life. It is nice to join hands with a winner. We plunge ahead no matter what befalls us with a grateful heart to give out the love we have for today. Each day is a gift. I will be praying for you. You have a great family!
Posted by Jane (who is 52 and has NF2 and part of the NF2 Crew)
Posted on 06-05-2005
Hi Asa!!!
I just read about you on the Children's Tumor Foundation Website (ctf.org) You are an amazing young man.
I did't get to see you on the Today Show this morning, but we'll be looking for you tonight on ET.
Just wanted to let you know you have a family looking out for you here in Southern California. You are in our prayers.
I have a 10 year old daughter with NF1.
Posted by Sierra's Mom-Stacie (CA)
Posted on 06-05-2005
I think that you are a truly amazing person and I really mean that!
Posted by Laura Rodriguez
Posted on 06-05-2005
All of us from the Walsh Middle school in Framingham, MA U.S.A wish you the best of luck in your Quest to get better!
Posted by Walsh middle school
Posted on 06-05-2005
Hi Asa hold on you are tough so you can get through this and ill be prayin' for you man!!
Posted by Luis Bonilla Ft. Myers Florida
Posted on 06-05-2005
Asa,
I saw the story on your world tour this morning on Today.
Live life everyday. You have an amazing father and mother.
A truly inspiring "love story."
All the best,
Jeff, Sandy, Evan & Josh Parness
New York City
Posted by Jeff@NewYorkSaysThankYou.org
Posted on 06-05-2005
asa, looking foward to seeing ya soon
james
Posted by
Posted on 04-05-2005
hello asa, Hannah and I where just looking at your messages in H&S. good luck with all your interviews, you can do it!
Take care and see ya soon.
love James and Hannah
Posted by Hannah and James in H&S
Posted on 04-05-2005
Hi Asa,
Have fun in the Big Apple, Hope This Morning went okay. I shall see you on your return when you get that bass guitar out....Happy Travels bud.
;o)
Posted by Rickus, Isle of Wight
Posted on 04-05-2005
hello tillers have a lovely time in new york! and relax your a natural. love you all lots love nina xx
Posted by meeeeeeee : )
Posted on 03-05-2005
Dear Asa:
I am Wong Cheuk Hei,you can also call me Kenny Wong.I am eleven years old.I am in p.6 in the school.I live in Hong Kong,hear have a lot of huge department stores,so some people call it"The Shopper's paradies".Can you tell me some about you.
Posted by Wong Cheuk Hei
Posted on 02-05-2005
14 years on May 2nd. Congrats! Love and hugs to you. Do hope all the interviews and travels go well.
You're a star, always were, always will be.
Take care, god bless.
Posted by Nan Jean and Jessie xx
Posted on 02-05-2005
Dear Asa ,
I am from Hong Kong, and is also the same age as you. I feel very bad about you, just here to tell you that even though you cannot see very well now, but you saw the whole world, which is very lucky. I hope you keep the smile on your face. :-)
You can contact me by e-mail at light_blue_helen@hotmail.com
Posted by Helen
Posted on 29-04-2005
Hello Asa
I know about you as I live on the Isle of Wight. I think you are very brave, strong and very handsome! I love your cheeky smile. Whatever life holds for you it will, but however long your time, or anyone's, making the most of it is the best way of all to live. Keep living Asa.
Posted by KC, Isle of Wight
Posted on 29-04-2005
Hi Asa,
heard about your condition, remember the future is always bright and live your life to the fullest
Posted by Russ from Singapore
Posted on 29-04-2005
hi my name is sam and i live in derbyshire and i used to live on the isle of wight. And my dad used to play football with your dad graham alexander.also my cousin is good friends with your sister jolie hurst.see ya
Posted by sam
Posted on 28-04-2005
I am from Hong Kong. I have read your story and I believe God will has his plan. No matter what happen to Asa, God will be there with him:))
Have you considered publishing a book about this? All money received by selling this book can help in any means.
Sincere Wishes
Desmond from Hong Kong
Posted by Desmond from Hong Kong
Posted on 28-04-2005
what a cute boy!
don't give up, there is always hopes in future.
Posted by tomhans from Hong Kong
Posted on 28-04-2005
Our bodies are an outer shell and our strength comes from within us.
Asa, though I do not know you or your family. You have managed to touch me in a way that I thought was impossible. Your strength and attitude is breathtaking. You are experiencing things which most people will never experience in their life time. Skydriving is something I could never do but you did it, you flew through the air like a dove.
You are a inspiration to all!
Posted by Leanne
Posted on 28-04-2005
Hi Asa,
We heard your story from radio. We hope you will continue your cheerful life and never give up. God will do the rest.
Posted by Lep from Malaysia
Posted on 27-04-2005
Thankyou so much for the support and wonderful messages left for my son Asa.
We are now in the process of making arangements to go to America to do a number of TV interviews. If we can now help in bringing this terrible condition to the attention of many unaware public,then I think so much good can come from this. This condition now effects One in Thirty Thousand but in terms of the drug companys this does not represent a good return in profits. This condition is not well funded and if We can in anyway bring the attention of our story to so many, then hope that this will help.
Asa is happy and doing well and to him all this exposure does not worry him at all.
He is so positive and even though we have seen this condition take hold so strong he will keep going.
Thankyou all for being there.
Posted by Paul Singleton
Posted on 27-04-2005
I am sadened when i read about Asa.I knew Also a young boy who's suffering with similar disease as Asa's,HIs name is Howard He is has been diagnose Of NF1, when he was 10 months old.HIs Parents been searching for specialists for his Disease.I am grateful I found Asa's website.HOpe this will helps to search for related doctors.For Asa,Keep going God will help you.nothing is impossible to God.
Posted by Vicky Cadiz
Posted on 27-04-2005
Dear Asa
I am sorry to learn your sorry from HK newspaper. Be brave, pleasant and don't give up. You are a lovely boy and your parent need you so much. Everyone around you would like to see you smile. Your illness should be overcome soon. God always bless you and your family
Posted by Lam & Ho
Posted on 26-04-2005
You are so brave Asa! You made me shame of myself that I always moan about everything in my life. You inspire me Asa. Thanks. Everyone here will stand by you. x
Posted by Kennis (Hong Kong)
Posted on 26-04-2005
You'll never walk alone. You will be suppoted by us all times.
Posted by Hong Kong Fans
Posted on 26-04-2005
ASA, be a brave boy , you know very well that the world is loving you , all your friends & family members wanted to see you happy each days. God Bless You , stay happy & be happy. Live lif to the fullest. We all pray for you each days & hope miracle will happen.
Posted by Doreen/533
Posted on 26-04-2005
Don't give up. I'm come from Hong Kong. I've read your news on newspaper. I'm a teacher. I'll try my best to ask my students to donate money for you. Try your very best.
Posted by Wendy Lee
Posted on 26-04-2005
You are not a simple boy, you are a brave boy! Enjoy your time!
Posted by HonGo
Posted on 26-04-2005
Hi, Asa:
Hoping you can keep it up and never give it up!
Posted by Melvin (Taiwan)
Posted on 26-04-2005
I will always support you !!!
You can see the world by your Heart !!!!
Don't worry , be happy !!!!
Posted by GaryKeiKei from Hong Kong
Posted on 26-04-2005
My thoughts and prayers go out to you. At age five, my daughter was diagnosed with NF 1, and found out that I passed it along to her. I know of the problems associated with both types of this disorder, and know that we are lucky to have type 1. I will keep you in my prayers, and maybe someday a cure can be found.
Posted by Robin Pickens St. Louis MO
Posted on 26-04-2005
Hi Asa
We love your website! This is Nicole (your dad's cousin) and old friend of your nanny and grandad writing. Lots of love to you from all our family, Chris, Danielle, Ed, Lucy, Esther and Matt, xxxxx
Posted by Nicole Braham
Posted on 26-04-2005
Hi Asa,
I read your story today. You are an inspiration to the world. I have NF1 and try and educate others about NF. Keep ypur spirit up and know that you are supported and loved by thousdands you have never even met.
Posted by Andy, NYC
Posted on 26-04-2005
Hi Asa,
I read your story today. You are an inspiration to the world. I have NF1 and try and educate others about NF. Keep ypur spirit up and know that you are supported and loved by thousdands you have never even met.
Posted by Andy, NYC
Posted on 26-04-2005
dear asa, we are sending this message from singapore. we share your atory on air. we are radio dj.. hope can help you.keep it up.
our website is www.ufm1003.com
Posted by ufm dj
Posted on 25-04-2005
Dear Asa,
I am here at your website after hearing your story on UFM1003, a radio station in Singapore.
Hang on there and continue to live life to the fullest! I am truly inspired by you.
Posted by Charles Chong
Posted on 25-04-2005
Dear Asa,
I am here at your website after hearing your story on UFM1003, a radio station in Singapore.
Hang on there and continue to live life to the fullest! I am truly inspired by you.
Posted by Charles Chong
Posted on 25-04-2005
Dear Asa.
Hang on there. Heard your story from UFM1003.
Posted by Dennis
Posted on 25-04-2005
Dear Asa ,
l am a Hong Kong girl too~~
l must totally support you and you shouldn't give up easily because you have your parents' love and you are very brave!!^^
Posted by Grace ,from H.K.
Posted on 25-04-2005
Keep it up,Asa.
Posted by Nicholas Chen Jiajun
Posted on 25-04-2005
Hi Asa,
Heard your story from UFM 100.3 too, be strong, you have my support...
Posted by Shirlene Soon (Singapore)
Posted on 25-04-2005
Never give up~!!
Love From Hong Kong.
Posted by Jacky T
Posted on 25-04-2005
Dear Asa,
Hi,i heard your story from UFM1003 radio station at Singapore on this morning.
You must be strong in future, because you are lucky boy have parent & so many people love you.
Posted by Yvonne Yeow, from : Malaysia.
Posted on 25-04-2005
Hi Asa,
You have my support, so live bravely!
Posted by Wayne from Hong Kong
Posted on 25-04-2005
Dear Asa,
All ppl support you, thank you UFM 1003 radio station!
From:
Johor Bahru,
Malaysia
Posted by ST
Posted on 25-04-2005
Dear Asa
Heard about your story from UFM100.3 (Singapore most popular radio station) this morning. Feel sad to learn that but you must be strong to live your life to its fullest.
And, do hope that your dream of traveling will come true with the generous sponsorship from all over the world.
Be strong & you will have our supports ....
Posted by Love, Singapore
Posted on 25-04-2005
You earned more than what u lost - Greatest love from your family and friends. Best wishes to you!!!
Posted by Hong Kong, Lock Cole
Posted on 25-04-2005
Asa, as an old chinese saying "future is for those with encourage". Your life ignites the meaning of others. May God bless you ^_^
Posted by orpheus (HK)
Posted on 25-04-2005
Asa, as an old chinese saying "future is for those with encourage". Your life ignites the meaning of others. May God bless you ^_^
Posted by orpheus (HK)
Posted on 25-04-2005
Dear Asa,
I am a Chinese girl from Hong Kong. I read the news about you. I think many people love you and I am sure you love them also. So please don't give up.
I am a Catholic so I will pray for you.
God bless you and your family.
Take care~
Best wishes,
Virginia
Posted by Virginia
Posted on 25-04-2005
DEAR ASA
NEVER GIVE UP !!!!
GOD BLESS YOU AND YR FAMILY^.^
Posted by EVA, HONG KONG
Posted on 25-04-2005
DEAR ASA
NEVER GIVE UP!
I LOVE YOU TOO!
GOD BLESS YOU!
Posted by Winnie (H.K)
Posted on 25-04-2005
Dear Asa:
May God Bless you.. Be strong!!
Posted by Peter So Hong Kong
Posted on 25-04-2005
Hi Asa,
God give you the lesson and give you parents with angel heart.
Be strong! I think many people will pray for you in world .
Posted by CK Leung, Fanny and Kinson
Posted on 25-04-2005
hello, i am a girl from Hong Kong. ihave just read your news form the newspaper. i dont know what can i do . just want to encourage you . hope you can cheer for your life and teasure the love form your parents . ^__^
Posted by candy hui
Posted on 25-04-2005
親愛的阿薩 ．辛格爾頓
你好!!透過報章,知道你身患重病,我很擔心你的情況,希望你保重身體,努力!加油!
一個無能為力的茵上
Posted by 遠方的茵
Posted on 25-04-2005
Dear Asa:
May God Bless you.. Be strong..Never give up..Take care~
Posted by yan,HONG KONG
Posted on 25-04-2005
Dear Asa,
I just read the news from today's newspaper. Please do not give up. You know many people all over the world will support you and at least you have a very warm and lovely family. God bless you.
Posted by Peggie (Hong Kong)
Posted on 25-04-2005
Dear Asa,
You are a strong boy, don't give up. And yr parents are so love with you.
Mr./Mrs. Paul both of you are
so great to yr son.
God bless you !
Posted by YUKY (HONG KONG)
Posted on 25-04-2005
ASA
I'm in Hong Kong. Know your news at newspaper. Don't give up. You will never know what you'll get tomorrow.
Good Luck
Peter Wong
Posted by wong Peter
Posted on 25-04-2005
I read your story in the newspaper today.
Your story is really touching.
Be brave. Be strong.
Posted by Allen Wan (Hong Kong)
Posted on 25-04-2005
Dear Asa,
Be Brave! Don't give up!
Posted by Daisy Chiang (HK)
Posted on 25-04-2005
Wish you the best, never give up.
Support you!
Posted by Derek
Posted on 25-04-2005
I'm in HONG KONG,know your news at newspaper. Don't give up. You know many people all over the world will support you and at least you have a very warm and lovely family. God bless you.
~ Good Luck :>
Posted by Mandy : )
Posted on 25-04-2005
Im am from HK too.
I don't think i am able to understand your feeling but I am glad that you still think positively (as i read on the newspaper).
May the god bless you.
Posted by Steven, Chong Chi Hang
Posted on 25-04-2005
Hi Asa , you are so brave and don't give up
Posted by Smoffy From Hong Kong
Posted on 25-04-2005
Dear Asa,
Just want to let you know, I read your story in Hong Kong's newspaper.You are so brave. God bless you and your family!!!!!!!!
Posted by Hazel
Posted on 25-04-2005
Im am from HK too.
I don't think i am able to understand your feeling but I am glad that you still think positively (as i read on the newspaper).
May the god bless you.
Posted by Steven, Chong Chi Hang
Posted on 25-04-2005
you spend all of your money to help your children keep a good memory, your story is so touching and you are so kind. Hoping you are happy in your mind. - from hong kong.
Posted by vam
Posted on 25-04-2005
you spend all of your money to help your children keep a good memory, your story is so touching and you are so kind. Hoping you are happy in your mind. - from hong kong.
Posted by vam
Posted on 25-04-2005
Dear Asa :
I'm praying for you. And I believe in God helping you. Be sturdy !
God bless.
Posted by Joseph Ip ( From Macau )
Posted on 25-04-2005
Asa, be strong!
(A warmth from Macau)
Posted by Anthony D.S. Lam
Posted on 25-04-2005
hang in there, pal - u can make it!!
i am proud of u and your whole family, even though i am just a stranger across the ocean...
Posted by sanne from asia
Posted on 25-04-2005
TOMORROW IS A BETTER DAY...
ALTHOUGH YOU CAN'T SEE ,
BUT U CAN FEEL.........
WE WILL SUPPORT U !!
Posted by SANDY CHAN SIN IENG FROM MACAU
Posted on 25-04-2005
Dear Asa,
I am so sorry to hear your story in the newspaper today but I am really proud of your brave and positive thinking as well as all of sacrification of your parents.
You touch me very much and also remind me to take care every one in front of me.
But don't worry ....don't be disappointed !! I really believe that you can win your illness and continue to live with your family and your friends.
Posted by Eddie Ng from Hong Kong
Posted on 25-04-2005
Asa,
I'm sure that you'll get through it! May God bless you!!
Posted by Bryan from Hong Kong
Posted on 25-04-2005
Dear Asa,
Hope that you will grow up with strength and happiness. May God bless you.
Posted by Mandy from Hong Kong
Posted on 25-04-2005
Dear Asa,
I read your story in Hong Kong's newspaper.
Don't worry, be happy...
May the god bless you.
I support with you everytime~~~~~
I hope you have a beautiful life!!!
Posted by Virginia ^(oo)^ (Hong Kong)
Posted on 25-04-2005
Dear Asa,
I also read your story in Hong Kong's newspaper today.
I wish you joy for a lifetime.
Posted by SC
Posted on 25-04-2005
Dear Asa,
I also read your story in Hong Kong's newspaper today.
I wish you joy for a lifetime.
Posted by SC
Posted on 25-04-2005
Asa,
God bless you
I hope you can have a beautiful life with your lovely family.....
may be with your girl frd...haha
be the strongest!!
Posted by Mike @ Hong Kong
Posted on 25-04-2005
Asa & his encouraging parents,
It's a real pity to note Asa's deterioting conditions from newspaper today! I do personally wish that there be miracle at some later stage that Asa could recover. Let's everyone in this world bless Asa forever!
Posted by Jacky Ng from Hong Kong on 25th April 2005!
Posted on 25-04-2005
Hi Asa,
I read your story from newspaper today, where will be your next destination? Have you ever been to Hong Kong?
I hope you will be happy & joyful everyday. Wish you all the best!! Many people from the world support you!~~~
Posted by Carrie from Hong Kong
Posted on 25-04-2005
Dear Asa^^
May the god bless you.
We support you foever!
Posted by anna frm hk
Posted on 25-04-2005
Hi Asa
Even you can't see but you can feel the warm in the world. Take care yourself and have a brightful future with your parents. Don't worry and keep smile.
Posted by William Chow from Hong Kong
Posted on 25-04-2005
Hi Asa,
Have heard your news from singapore radio UFM100.3.
Best wishes to you and do not give up hope !
Posted by from Singapore
Posted on 25-04-2005
Dear Asa & Parents,
Be brave, never give up! God will always be with u!
Posted by annie @hong kong
Posted on 25-04-2005
I readed your story from the hong kong newspaper.I hope I can give you some energy to face situation. Yours Sincerely
Posted by 阿薩
Posted on 25-04-2005
I am a Chinese, hoped you may strongly live, everybody can support you., your parents are very great! Hopes your family to be allowed exactly happy,!
Posted by KIKI
Posted on 25-04-2005
Dear Asa,
May the god bless you.
Posted by cookie frm Hong Kong
Posted on 25-04-2005
Dear Asa,
When I read about you this morning,I was so touch by your story, I wish that I'm a fairy and I just blow a kiss to make you alright, anyway life is full of suprise,may be by tomorrow there is a cure for you, don't ever give up,I'll pary for you everyday,
good luck and take care!
Posted by lewina M
Posted on 25-04-2005
Dear Asa,
May God bless you and your family always.
Best Wishes!
Posted by Icarus & Juliana
Posted on 25-04-2005
Goodboy,you can well soon.
Hope you can see forever!
Posted by Ling(HongKong)
Posted on 25-04-2005
Dear Asa,
Be strong, be brave....to explore every new chapter in your life!!Let's never give up, we couldn't know what will happen next.....anyway, don't be afraid.....as long as we know loves are always around u & me....and no regrets in our lives....
Posted by Nothing is impossible ^v^
Posted on 25-04-2005
God Bless you Asa.You are a very brave young man.My thoughts and prayers are with you
Posted by Patricia (Spain)
Posted on 25-04-2005
God will always be with you. Bless you. You're a very very brave boy.
Posted by Goretti Leong & Goretti Lei
Posted on 25-04-2005
Good luck mate, all the best. You are a very brave lad, and are very lucky to have such a loving family.
Posted by Cory, Emma and Eva
Posted on 24-04-2005
Good luck mate, all the best. You are a very brave lad, and are very lucky to have such a loving family.
Posted by Cory, Emma and Eva
Posted on 24-04-2005
Dear Asa,
hi, i am a girl from Hong Kong, it's a city in Asia, have you been there?
i've just read about your story in my local newspaper,
and i feel so touching, i can dell you are very strong.
your parents are so great~
you are a lucky boy to have your paretns love you so much.
asa, you have to live your life with every colour~
i believe you must be a great guy when you grow up~
(I am sorry that my english is no good >.<)
Posted by Jo ^o^ from HongKong
Posted on 24-04-2005
Dear Asa,
hi, i am a girl from Hong Kong, it's a city in Asia, have you been there?
i've just read about your story in my local newspaper,
and i feel so touching, i can feel you are very strong.
your parents are so great~
you are a lucky boy to have your paretns love you so much.
asa, you have to live your life with every colour~
i believe you must be a great guy when you grow up~
(I am sorry that my english is no good >.<)
Posted by Jo ^o^ from HongKong
Posted on 24-04-2005
Hi Asa. I work with your Uncle Ross & he keeps me updated on how you are.
I'm glad you had a good time travelling. Hope school is ok & you enjoy the Easter break.
Lots of love & thinking of you,
Sarah
Posted by
Posted on 02-04-2005
my name's oli bryant. i love to trek, trekin's my life. let me be with you rather than against you and we will trek through all eternity and reach our goal.
Posted by oli bryant
Posted on 10-03-2005
alrite mate its adam here i raised about £400 for you a few months ago. see you later mate
Adam
Posted by adam shackleton
Posted on 03-03-2005
Thinking of you Asa. You are one hell of a special lad!
Posted by
Posted on 24-02-2005
missing you all, Hope you are having a great time - Not long before you are back to reality.
all my love frrur
Posted by Debbie Pakes
Posted on 15-02-2005
Hi Asa ,
Do hope you are enjoying your adventure in New Zealand . Thinking of you and the fun you had when over in Cyprus regards Terry and Lynn
Posted by Terry Mills
Posted on 15-12-2004
hope your enjoying trip
Posted by roy clayton
Posted on 10-12-2004
Well, it was about this time last year we met in California. Carl and I only hope you are doing well and think of you often.
Posted by Katy and Carl Blair
Posted on 13-10-2004
10 hearts
Posted by
Posted on 10-10-2004
Okay I keep hitting enter and I am messing up! Asa, hi from Los Angeles, and I hope you had a great birthday! How is the go cart did you crash yet? I hope not?
I hope you are feeling well and your family is doing great! I continue to think about you and hope and pray that you remain strong continue to have fun in life. High school? Wow! Have a great summer... say hello to mom, dad and Dominique!
With love, Jody
St. Vincent Medical CEnter
Los Angeles, California, USA
Posted by Jody Spector, St. Vincent Med Ctr, SetonHall, Los Angeles
Posted on 06-06-2004
HI Asa,
Funky Soul Rebel informing you that the show is back on the road. Are you up for playing 17th June. It's time the 'Asa Allstars' kicked a**! again.
Hopefully England will beat Switzerland too!
Posted by Funky Soul Rebel
Posted on 04-06-2004
Hi Asa,
This is Charlie Berger one of the guests from Seton Hall. I check the web site frequently and wanted to wish you a Happy Birthday.
My regards to your family,
Charlie
Posted by
Posted on 31-05-2004
Hi Asa, was glad to hear from your dad that you had such a good birthday party. Hope that your card skills are still making you successful at the card schools!! Take care and tell dad I will sort out his fresh seafood asap. Take care Asa
Posted by Sue and Bryan
Posted on 21-05-2004
Happy birthday ASA - big day, huh? Hope it was a happy one.
Posted by Carl and Katy Blair
Posted on 02-05-2004
Iv just finshed all of those simpsons dvds thank u so much they were wicked so funny cu soon mate.
Posted by jayden blanchard age 5
Posted on 06-04-2004
Hey Ace,
Hope all is well with you over there on the sunny isle of wight.Well not long now and i will be back ready to take some more of your abuse.I hear you have been playing the guitar,maybe you could write a little song for me for when i get back(and not a rude one).Take care mate see you soon.xxx
Posted by slaps .New Zealand
Posted on 31-03-2004
Hi Jody and all at at L.A.
Thankyou for leaving message,
well as you have been reading Asa is o.k. but it is a worrying time and we just hope that Asa's positive attitude will help him through
Asa has been busy with preperation's for his birthday party in May and also this week took a look at High school which he will attend in September.We have two big birthdays this year Dominique 16 and Asa 13.
My year off from work ends next week and I think we have set up everything I set out to do for Asa if not more.I intend on taking Asa traveling
as and when Asa's health permits and that is in planning now.Friends are buiding Asa a Go Kart 150cc and that should be ready soon.
We have large sand banks for its test run!
I hope you are all well and we hope to drop in on are travels.
Posted by Paul Singleton.
Posted on 26-03-2004
Asa,
my name is Bruno and I have NF2 too.
I have a web site with my history in english, try it !
www.neurinoma.com.br/English/index.html
[also see the links page - Ed]
God bless you,
Bruno RebouÁas Tamassia
Posted by Bruno Tamassia
Posted on 21-03-2004
Hi from Los Angeles! I am so glad the website was updated!
Paul, Deb and Asa, this is Jody from Seton Guest Center.
And hello to all the seton guests that still stay in touch with Asa.HOw great email is!
The news is scary... but I know your family and god will help you make the right decisions. I hope my coworkers/doctors in L.A. give you the right direction.I know the spine tumors can be painful, and getting the brain tumors out at the right time and with some ABI to keep hearing is also important.
I wish you all well! Asa, my Harley Guitar Playing Man... I hope you get to play hard at your birthday coming up! I love my Isle Of Wight Calendar! What a beautiful place! You are so lucky to live there.
Be well...
Love, Jody
Posted by Jody Spector, St. Vincent Med Ctr, SetonHall, Los Angeles
Posted on 15-03-2004
Asa,
Jayden was just talkin about u, so a quick message to say hello mate hope ur ok,
cu soon x
Posted by jayden blanchard age 5
Posted on 15-03-2004
hi asa i also suffer from nf,so i know how u feel,hope it all goes well for u best of luck .del
Posted by del@riversfreeserve.co.uk
Posted on 02-03-2004
Just seen you on the tele!!
COOL
Posted by AR
Posted on 02-03-2004
Hi ASA (mum and dad, too). Sorry to hear you're having problems. After I read about what some of the others who have had surgery are going through, I feel very lucky. Like you, though, the balance part is still very tricky. A few other problems that I try not to dwell on. We think of all of you often and our time together at Seton and St. Vincent's. Keep the chin up and play some tunes.
Posted by Katy and Carl Blair
Posted on 28-02-2004
Hi
just a quick note to let you all know what is going on at the moment.Asa is having a few problems with his balance and pain in the lower back.We are having meetings with his consultants and various tests to try and find out the reasons.After the MRI scans results which showed a increase in tumours we now need to monitor the situation closely.
Asa is fine in himself and at this moment upstairs having a guitar lesson.We are planning a big birthday party for him on May 1st at a local hall and hopefully Asa will be playing guitar that night!
Also a big thankyou to all of you that have kept in touch,sorry it has been so long in updating the site.
We have been taking a break from the fund raising but intend starting with some new events soon.
Posted by Paul Singleton.
Posted on 27-02-2004
Hi ASA,
HOPE THAT YOU ARE STAYING WELL. I WISH YOU WELL WITH YOUR NEW CHALLANGES BECAUSE YOU HAVE THE CAPACITY FOR STRENGHTH AND HOPE. sAY HELLO TO YOUR FOLKS
Posted by Charlie Berger fromtSt Vincent's guest center
Posted on 26-02-2004
MYSTERY POET AND MR NOSEY,
I DONT KNOW WHO YOU ARE BUT YOU MAKE ME SMILE WHEN I READ YOUE MEASSAGES
BIG THANKYOU X
Posted by ASA'S MUM.
Posted on 25-02-2004
I you visit the "how you can help page" you can now make a donation by credit card.
Posted by BP at Paktron
Posted on 23-02-2004
stephanie,
I hope your op went well
Posted by
Posted on 23-02-2004
hiya asa just been reading your letters hope ur ok i've got long blonde hair and blue eyes and also play the drums!!!!
from a friendxxxx
Posted by blue eyes
Posted on 23-02-2004
I just heard on the Radio,
Some news about me mate,
So I just popped into asa`s site,
I hope i`m not to late,
I like to tell me little mate,
there is`nt much to fear,
cos stuck out here in syber space,
the mystery poets near.
Posted by The Mystery Poet still keeps watch
Posted on 23-02-2004
Hey Poet,You anit the only one who still keeps watch.
I do as well. anyway whats your name?
Where do you live?
what do you do?
you married?
got any kids?
how much do you earn?
what did you have for breafast?
well,come on tell me
Posted by Mr Nosey
Posted on 23-02-2004
Hi Asa, my name is Stephanie and I am 32 years old. I just found out this past Oct. 2003 that I have NF2. I have serveral tumors all over the place. My first surgery is scheduled this February 18, 2004 and a second later in the year. I've read your courageous story and my prayers are with you. This disease needs to have more attention brought to it. I have been mis-diagnosed for ten years! I'm a little mad but I know I shouldn't be. I have this inner desire to bring more awarness of nf2 to the public. My husband was searching the web when we came across your website. It gave me hope and strength. My thoughts and prayers will be with you and your family. God bless you little Asa. -Love Stephanie Reini, reiniksks@hotmail.com
Posted by reiniksks@hotmail.com
Posted on 08-02-2004
I am so sorry to hear of your condition. My prays are with you.
Posted by Nthebulldog@aol.com
Posted on 08-02-2004
Allo mate,
Good guitar lesson yesterday. Groovin dude!!!
Seeya next week!
Posted by funky soul rebel
Posted on 04-02-2004
alright shhun bored & on the computer so i thought i would ava look 2 c how your web site is going shame its not as lively as it could b but neva mind im sure it will b when the time is right hi 2 every1 still taking the time 2 log on.
Posted by handy man
Posted on 03-02-2004
HOWS IT GOING ASA
Posted by BP
Posted on 26-01-2004
hi asa, hope you're doing ok.
Posted by A wellwisher
Posted on 22-01-2004
HEY ASA! HOWZ U IM IN SCHOOL AT THE MO BUT I THOUGHT ID SAY HI. HOPE U AND DOMI HAD A GUD XMAS N NY. CAN U THANK YOUR DAD AND MICH 4 MY PREZZI WELL GOTTA GO B4 I GET DONE SO HOPE TO C U SOON LOVE U LOADZ ABS X X X X X X X
Posted by ABBIE
Posted on 12-01-2004
RIGHT IM BACK AGAIN AND IM WIV NINA ON THE COMPUTERS!! WE IS JUST SAYIN HELLOOOOOOOOOOOOOO!!!
Posted by BOARED PPL AT SCHOOL!
Posted on 12-01-2004
good luck asa
Posted by jarv
Posted on 12-01-2004
where have all the people gone? come on!!!
Posted by some oner who still cares!!!
Posted on 08-01-2004
Happy New Year Asa and familyl - we're thinking of you and hope the year brings you happiness.
Posted by Carl and Katy Blair
Posted on 04-01-2004
Dear Asa,
I hope your trek to Peru was loads of fun; also hoping that you are feeling well and enjoying the Holiday Season.
With the New Year, may your Faith and Strength also be renewed.
keeping you in my Prayers.
Posted by B.Barber
Posted on 26-12-2003
HELLO TO ALL IN ENGLAND AND TO ALL OUR NEW FRIENDS IN LA HOPE YOU ALL HAVE A WONDERFULL CHRISTMAS AND A VERY HAPPY NEW YEAR!!!! MANY THANKS TO ALL OF YOU THAT HAS HELPED WITH RAISING MONEY FOR THE TRUST FUND. ASA IS DOING VERY WELL AND LOOKING FORWARD TO CHRISTMAS LOTS OF LOVE ASA AND FAMILY XXXXXXXX.
Posted by
Posted on 20-12-2003
To you all on that little island - we wish you a wonderful holiday season!!
Posted by Carl and Katy Blair
Posted on 19-12-2003
hi poocha's
how are you?
at school but not menna be but i havent got anythinh else to do!!!
looking forward to christmas dinner with the turkey
love you
love nina xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Posted by Step-Sis xxx
Posted on 17-12-2003
PERU
We returned on Wednesday night after 32 hours of travel.
A trip of a lifetime and a experience we will never forget.
On the mountain trek we didnt pass any other travelers and the scenic passes were breathtaking.
We reached a height of 4800 mtrs and for me personally a very emotional moment.We intend updating the website asap with photos and personal stories.Thankyou for keeping in touch,Asa is doing fine.
Posted by Paul Singleton.
Posted on 24-11-2003
Hi Asa - Just thinking about you and wondering how you are doing. I started driving last week so that was a big milestone. Still get "wobberly" if I get too tired. Glad you like your shirt. Hope Paul is doing well on his trek. Say hi to Deb.
Posted by Katy Blair
Posted on 18-11-2003
Hi Asa, Deb and Paul..... from Jody in Los Angeles, Sounds like your Dad is having fun and having an incredible experience. Asa, I sure hope your headaches stay away and school is going well.
I miss your cool smile!
How is the Harley? Did it get up and running??
So cool that the Blairs are doing well and write to you too!
BE well! SAy hello to all!
Posted by Jody Spector, St. Vincent Medical Center, Seton Guest Center, Los ANgeles
Posted on 18-11-2003
I treck up hills and mountians
somtimes the outlooks bleak
and when we rest i leave the track
to take a little leak
urination is a dangerous task
and has to be done fast
cos if you hang about to long
the others will treck past
and it would be quite easy
to find you are alone
and then your in the poopoo
cos you wont know your way home
so if you fancy trecking
take this advice from me
keep one eye on the trail guide
when you stop to take a pee.
Posted by The mystery poet
Posted on 18-11-2003
Hi Asa,
Hope your well dude. I'm expecting a call. Say Hi to your mum and regards to all the boys on the trek.
Posted by Funky Soul Rebel
Posted on 14-11-2003
hi 2 everyone following our progress & thanks 2 everyone 4 there support.we r in a small town at the bottom of machu picchu.we r going back 2 the old ruins 2day.we have spent the last 5 days hiking here through every terrain possible & i have 2 say its the hardest thing i have ever done but also the most rewarding.& its all 4 u little man i look 4ward 2 seeing u soon sshun.miss u dom & dj.got 2 go now as the bus has just turned up.adios amigos.xxx
Posted by lee d
Posted on 14-11-2003
hello asa i hope you are ok i saw some people the other day that was doing a hike to support you. love debbie oakes!
Posted by blazindeb14@aol.com
Posted on 09-11-2003
helllo asa
Posted by debbie
Posted on 09-11-2003
hi everyone,well we are at Cosco and getting used to the climate,All doing well and looking forward to the trek walked up to some Inca ruins today and found it hard going with the altitude.Cosco is amazing and everything I expected.Very cheap and just about anything can be purchased.Will keep in touch.
Posted by Paul
Posted on 07-11-2003
Good luck to all the boys trecking in peru.
Posted by Tania nz
Posted on 06-11-2003
HI KATY AND CARL,
THANKYOU SO MUCH FOR MY COOL HARLEY T-SHIRT ITS GREAT AND FITS ME PERFECT!! JUST ME ,DOMINIQUE AND MUM NOW AS THE BOYS HAVE GONE TRECKING.IM BACK TO SCHOOL NOW AND DOING WELL AND THE HEADACHES HAVE GONE.HOPE YOU AND CARL ARE DOING OK.I HAVE A HOSPITAL APPOINTMENT ON MONDAY 10TH NOVEMBER AT SOUTHAMPTON JUST A CHECK UP SO THATS COOL ANOTHER DAY OFF SCHOOL!
TAKE CARE ASA .
Posted by ASA
Posted on 06-11-2003
Good Luck boys!!!
Posted by
Posted on 05-11-2003
dear Paul and Lee,
good luck with the trecking in Peru. Hope it all goes well and I am looking forward to seeing you all at christmas. Take care
Gaz
Po